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My sick nephew

That is so sad! I will definitely say a prayer for your nephew tonight! Keep us all posted please!!

--Madeline
 
Man that is sad to hear. Please make sure he gets alot of love and attention. I still have the scars to show that I was almost passed at 2 years old in a serious household accident. I don't think that a kid I see who has an ailment or has been hurt doesn't get a kind word and a smile from me. Thats me a big redneck with a soft spot. . .

We'll hope the lil' guy comes out fine.
 
Tom.....our prayers are sent your way. Sorry to hear of the bad news. The worst part is the feeling of helplessness when it is a child. I'm sure the "Big Guy" is lookin' over y'all and everything will work out. :)

My wife was workin' in a lab with sulfur-type fumes(pardon the ignorance!) before she realized she was allergic and she had a similar reaction. She had burns/blisters in her nose and mouth, throat, stomach and out the other end! Bad news however, she survived it. A bit painful but survivable. She also shudders when relaying the message.

Hang in there, Brother! It'll get better!

Floyd T. :)
 
Many thanks to all of you for the kind words and prayers. It means alot to us, and I've relayed many (if not all) of the messages to my brother and my entire family. Its nice to hear such heartfelt kindness from people (they) don't know :love:

Since many of you asked, I will update his situation. He's actually feeling better. He still looks terrible, but he's acting alot more like himself. He's finally started eating again after nearly a week. He's started sitting up in bed, walking (running) around the hospital room, laughing a little and playing. These are excellent signs. The doctors feel he's going to make a 100% recovery. He's still got lots of dead brown skin attached, which we are told will eventually rub off, flake off or otherwise come off. He's got LOTS of exposed raw bleeding skin- though the bleeding has slowed alot. He still has the IV in his hand, but they have stopped giving him the fluids (saline?) continuously because his last blood count said he was low on iron, which they explained was a direct result of him not eating for so long.

They are sill giving him Morphine, though not as frequently. And this weekend they want to try and get him to take something for pain by mouth instead of by IV. He is still in contact isolation, not because he is contagious or anything, but because of all the raw exposed skin/legions they are worried still about his coming in contact with germs, bacteria, etc... They're worried about visitors and stuff giving him something.

The family is doing the best we all can. Like most families (I would think), with lots of kids of all ages, its hard to see someone so little suffer so much- especially while all we can do is sit there and watch. We've all cried, yelled, prayed and cried some more. There is no one person to blame, except for maybe the original Doctor who should NOT have given a 19mo old such strong antibiotic...?

This is the longest visit in a hospital I can remember ever. The doctor said we've got another week or so until he's released, and it will depend entirely on how well his skin heals, since they won't release him until he's out of danger from infection or contact infection.

He's getting lots of love... His favorite place to rest is on the chest of one of us, and I can tell you that AquaPhor jelly they're covering him in twice a day doesn't come out of clothes in the wash. ;)

So far, The Optomologist (eye dr) wants to see him for several weeks after he's dismissed, since his fear, is damage to his eye's... The other doctors haven't commented yet, but I'm sure they'll want follow up visits too, but we're not at that stage yet.

I can tell you all this, my 19 mo nephew is stronger than all of us...My hopes and prayers are that he won't have any scarring mentally or physically, or have any memory of this whole horrific ordeal. And that this will not reoccur, which I read it sometimes does. :(

God bless all the little children of the world... I've seen more pain in the faces of parents in that children's hospital than I'd ever thought I would. I've seen more pain in the faces of children, and heard the screams of pain and terror from innocent children coming from the rooms at night while visiting my nephew. This has been a nightmare- and I can't wait until its over.

Thank you all so much for your blessings and concern. It means alot to all of us.
 
Toaster said:
The doctors feel he's going to make a 100% recovery.
That is good news :thumbs: I have read somewhere about this kind of thing. I hope your nephew will recover as soon as possible.
 
Just reminds us all of how precious life is and not to take what we have for granted. Glad he's doing better, Tom. Also glad that he probably won't remember the pain and suffering he's going/gone through.

Gregor
 
Thank god he's doing better.Prayers still being sent Please keep us up to date.
 
Tom,

Glad to hear the little guy is doing better.....Now it's time for the family's healing. Debbie & I will keep you all in our prayers.

Frank
 
Tom...glad to hear their is positive progress. We'll pray that it continues! As for the Childrens Hospital, my wife works in one in the research department. I've learned a ton since she began working there andhave the tmost respect for all of the nurses and Doctors making it their life's dream to help children. May God bless all of them as well.

Keep up the good spirits! :D

Floyd T. :)
 
That is so great to hear! Still keep us posted as he's still in the hospital! I will definitely keep praying for your nephew & the rest of your family! God will bless you all in this!

--Madeline
 
Tom,

Happy to hear the good news. Little ones are so resiliant its unbelievable. I am sure there are still some hurdles to clear but its good that he is running around and eating.

All the best to the family.

BenjieV :D
 
Good to hear the little rascal's getting better bro. If there is anything I might be able to do to help out, let me know.
 
Well they finally released the little SOB! :) He's doing TONS better now, most if not all of the raw spots have new skin growth.. Now the thing will be to try and make sure he doesnt scar (if we can prevent it)

His spirits are great, basically the same as before :thumbs: he only complains when his parents rub him down with the AquaPhor vaseline coating. And I think its mainly because he doesn't like it more than it hurts ;)

The day before they released him he ran a little fever, so they kept him in the hospital one extra day, and they also want him to continue the Clendomycin(?) antibiotic to continue to fight off new germs (and such), and to continue to fight off the effects of the Stevens Johnson Syndrome.

It was a LONG tough fight... I wouldn't wish it on my worse enemy... We're all glad he's alive, in no immediate danger, and didn't require ICU of the hospital.

Thank you all for your kind wishes- I've read all of them to his Parents (My idiot brother and his wife ;) ), it meant alot to them.

THANK YOU ALL.
-Tom
 
Tom,

Praise God! I'm so glad to hear the news. My best to him and your family!

Joe
 
Great news. Wishing you and your family the very best and your still in me prayers.
 
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