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My sick nephew

Toaster

Puff Puff Pass v2.0 2004
Joined
Nov 26, 2002
Messages
1,445
Fairly sad today... This is the first time I'm on the computer in about a week or so.
My 19 month old nephew was taking "Baxtrum" (or Bextrim?) antibiotic, which contains sulfur. He took it for 14 days, all but the very last dose. Turns out he has a rare reaction as a result of the sulfur, which caused a condition called STEVENS-JOHNSON SYNDROME.

He literally burned from the inside out over about 75-80% of his tiny body. All within about 48 hours of finishing the medicine. His skin broke out in red blisters all over (face, neck, back, arms, legs, feet, hands, mouth, genitals: EVERYWHERE). They had to admit him to the hospital, where he (we all) have been since Thursday. :(

He's in isolation because the blisters have almost all broke (popped), exposing raw bleeding skin- and they (the dr's) are afraid he might catch something or the open skin/legions might get infected causing him even more harm. It's maybe the saddest thing I've ever seen in my entire life.... This 19 month old baby sitting in a bed, bleeding from almost everywhere. They are giving him Morphine for pain as needed, which is roughly every 3 hours. The only treatment they could have offered was Steroids, which they explained would weaken his natural immune system, and with the raw exposed skin, they were extremely worried about this- so they did a procedure they refer to as IVIG... I don't know how to say it, let alone type it... its Immu-Globins or something like that??? Its basically blood protein and antibodies from healthy human blood donors, to help fight off the sulfur in his blood and any infections he may come in contact with.

They are also covering him twice a day in "neosporin" like jelly from head to toe- to act as a "faux" skin to prevent germs/bacteria/etc from contacting his exposed legions and raw skin.... as well as giving him mortrin/tylenol for fever, benedryl for itching, morphine for pain and another antibiotic Clendomycin? to help strengthen his immune system. :(

For those of you who pray- I ask that you add my nephew to your prayers. For those of you who do not... smoke a cigar and wish him well.

(I'm sure several items are mispelled... Hell I can barely pronounce alot of what I've heard over the last week- let alone spell it correctly)

:( Tom
 
Tom,

I am so sorry to read about your nephew. Please, please send my thoughts and prayers to all the members of your family.


BenjieV ???
 
My wife is allergic to sulpha. Bad news.

Sorry to hear about your kin.

Prayer on the way.

M. Gipson
 
Very sorry to hear this, it is very hard to see one so young suffering. I know from experience, your nephew will not remember this suffering, but the rest of you will never forget it.

My prayers go out for your nephew and your whole family.
 
Toaster said:
Fairly sad today... This is the first time I'm on the computer in about a week or so.
My 19 month old nephew was taking "Baxtrum" (or Bextrim?) antibiotic, which contains sulfur. He took it for 14 days, all but the very last dose. Turns out he has a rare reaction as a result of the sulfur, which caused a condition called STEVENS-JOHNSON SYNDROME.

He literally burned from the inside out over about 75-80% of his tiny body. All within about 48 hours of finishing the medicine. His skin broke out in red blisters all over (face, neck, back, arms, legs, feet, hands, mouth, genitals: EVERYWHERE). They had to admit him to the hospital, where he (we all) have been since Thursday. :(

He's in isolation because the blisters have almost all broke (popped), exposing raw bleeding skin- and they (the dr's) are afraid he might catch something or the open skin/legions might get infected causing him even more harm. It's maybe the saddest thing I've ever seen in my entire life.... This 19 month old baby sitting in a bed, bleeding from almost everywhere. They are giving him Morphine for pain as needed, which is roughly every 3 hours. The only treatment they could have offered was Steroids, which they explained would weaken his natural immune system, and with the raw exposed skin, they were extremely worried about this- so they did a procedure they refer to as IVIG... I don't know how to say it, let alone type it... its Immu-Globins or something like that??? Its basically blood protein and antibodies from healthy human blood donors, to help fight off the sulfur in his blood and any infections he may come in contact with.

They are also covering him twice a day in "neosporin" like jelly from head to toe- to act as a "faux" skin to prevent germs/bacteria/etc from contacting his exposed legions and raw skin.... as well as giving him mortrin/tylenol for fever, benedryl for itching, morphine for pain and another antibiotic Clendomycin? to help strengthen his immune system. :(

For those of you who pray- I ask that you add my nephew to your prayers. For those of you who do not... smoke a cigar and wish him well.

(I'm sure several items are mispelled... Hell I can barely pronounce alot of what I've heard over the last week- let alone spell it correctly)

:( Tom
Bless his heart, I really hope he gets better soon. That sounds just terrible, just terrible!! I will add him to my prayers, I really feel for little ones for they are at the mercy of the world.
 
My prayers and thoughts to your nephew and all of your family Tom. Keep us update as much as possible. ???
 
Sorry to hear about this Tom. Our prayers are with you and your family...
 
IVIG... I don't know how to say it, let alone type it... its Immu-Globins or something like that???

Intravenous Infusion of Immunoglobulins - your description is right on - just posting the name for others that may want to look it up.

I am so sorry to hear about your nephew. This type of medical emergency will stay with you all, even if he never remembers the experience. I myself had an allergic reaction to medication when I was young - however it was not so graphic as this. They gave me Px after a tonsillectomy, which caused welts and rashes, so they switched to Tylenol (acetametaphin) to find out that I am one of few with extreme allergic reactions to that as well, causing a 106 fever and convultions. I, appearantly, spen days packed in ice and IVs etc. but (thankfully) don't remember since I was barely 24mos. My mother still shudders whenever it is brought up though.

Best wishesd for a full and safe recovery and for the patience and peace of mind for you all to endure this tribulation with him.

-K-
 
Our thoughts and prayers will be on your nephew and the family..Take care and keep us informed of his recovery.
 
Tom,

Prayers sent for swift healing and that the family can stay strong through this ordeal.

John
 
Tom I am so sorry to hear this your nephew and your family will be in my prayers.
 
A very rare reaction, and one that's impossible to foresee. Also happens with a particular psych medication in adults, and they DO remember. :(


Hug your nephew when you can, support his parents, and know that he will likely get better. Infants are remarkably resilient.

Not religious, but any positive thoughts and energy I can send are on their way. :)

Hang in there!
 
psyktek said:
A very rare reaction, and one that's impossible to foresee. Also happens with a particular psych medication in adults, and they DO remember. :(


Hug your nephew when you can, support his parents, and know that he will likely get better. Infants are remarkably resilient.

Not religious, but any positive thoughts and energy I can send are on their way. :)

Hang in there!
My thoughts exactly! Tom, I couldn't imagine that happening to my little guy. I'll keep you in my thoughts.

Gregor
 
Tom ... This is heart wrenching! Prayers sent for you and your Nephew and all his loved ones!

Please keep us posted.


Edited to say-

I thought this was a post from Gregor for some reason.
Tom my friend ... I'm truly sorry and my prayers are with you and your Nephew!
 
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